Our community-based genetics service assures access to genetic counseling for patients and their medical providers in the communities where they live and work, and promotes public awareness of genetics in everyday life.
The Central New York (CNY) Family History Initiative serves to promote healthy families in central New York through family health history collection. We invite you to learn more about how to collect your own family health history and how that information can help you lead a healthier life. Learn more...
The Community Genetics Program is a community based and community supported program serving patients of all ages at its offices in Binghamton, the Mohawk Valley, and the North Country (see our catchment map), as well as providing consulting and educational services nationwide. Genetic counseling is an intensive process, integrating information derived from a detailed medical history (a "pedigree") with genetic and other medical test results. The greatest challenge facing the Genetic Counselor is to present this complicated information to clients in an understandable form so that further medical decisions can be made. Our Community Genetics Program prides itself on working with a client's family and other medical proveiders, so that the process is seamless. Ferre's program is renowned for its prenatal, pediatric, cancer and cardiovascular genetics counseling specialities. (Website is currently unavailable.) Learn more.....................
www.nysgeneticcounselors.org has been designed for the public to learn more about genetic counseling, genetic counselors, and the families they serve. New York State genetic counselors are a diverse group of trained professionals with advanced degrees in genetics and genetic counseling.
to Genetic Helpdesk, an innovative web portal and genetic resource for physicians and healthcare providers.Increasing need to utilize and make available genetic information and genetic tests to patients and families can be challenging as the landscape of genetics and genomics advances.
Heart and Genes is a program specializing in understanding the role of genetics in cardiovascular disease. Our genetic counselors meet with individuals and families to discuss personal, family history, and environmental factors that may place them at risk for cardiovascular disease. We also discuss genetic testing options if available, and if so, we help select the correct gene for testing. Our counselors provide support to families at risk for heart disease, advocate for services, and refer families to local and national resources and support groups when appropriate. We serve families in upstate New York .
Do you need to know if and how a condition is inherited?
Do you need to know if there is a genetic test for a condition, or how to order the test?
This is a unique and free resource for physicians and health care professionals in the Mohawk Valley. There is an increasing need to utilize genetic information and genetic tests for patients and families. Did you know that gene testing is available for over 1000 genetic conditions?
We are a group of citizens, healthcare providers, scientists, public policy makers, legislators, scientists, and health care consumers who are concerned about direct-to-consumer (DTC) advertising for genetic testing.
In New York State, each year approximately 125,000 pregnancies are at risk of inadvertent exposures to agents that may cause birth defects. Furthermore, research shows that all pregnant women experience about three exposures during a "routine" pregnancy. These exposures can be medications, environmental exposures, workplace exposures, illnesses or infections, alcohol or other drugs and other exposures such as hair dye and skin care products. While some of these exposures could be avoided, others such as medications for medical treatment are necessary for the mother's well being. Our goal is to identify those exposures that increase the risk of birth defects and provide women and their physicians accurate information so that together, we can improve pregnancy outcomes in New York State.
The Infertility Education program provides information and resources on infertility and related health issues to healthcare professionals and the public. More specifically we make available, to couples experiencing problems bearing a child, resources for treatment and resolution of infertility, and adoption options. Professional resources include training in infertility and related reproductive health issues.
Families of Color Initiative was launched in 1999 as part of Ferre Institute’s Infertility Education Program. A review of the medical literature was led by Murray Nusbaum MD, Medical Director of Ferre Institute, to explore options in raising awareness about racial and ethnic disparities in access to information and care of women and men concerned about infertility.In 1999, Dr. Nusbaum provided a two year grant to launch the Families of Color Initiative. Tina Pilgrim RN MSW joined as the Project Director. During the two year grant Ms. Pilgrim actively approached many health and social organizations, seeking partners in bring information and support to communities of color. Since 2001, the Families of Color Project has had a web presence, been available to answer questions, and continued to encourage discussions about this important health disparity.
Providing New York State residents with support group resources on infertility and related health issues.
The Lesbian and Gay Family Building Project offers educational programs, information and referral services, and support groups for lesbian, gay, bisexual, transgender (LGBT) parents, prospective parents, and their children. We serve upstate New York, are funded in large part through the NYS Department of Health, and publish the Directory of Family Building Services for LGBT People , which lists welcoming providers. We also sponsor Pride and Joy Families groups in Binghamton, Elmira/Corning, Rochester, and Syracuse, NY. Each group gathers for educational and social activities including potluck dinners and picnics, and maintains a listserv for on-line discussions of family building and parenting issues, and for announcing
and planning group activities.
Promoting an Awareness of Family Health History and Future Health in LGBT Families
LGBT families are created in many unique ways. Our identified families share history, traditions and values and common medical backgrounds. This website was created to help LGBT families to understand how health, family history, health beliefs, healthy living and genetic background are an important part of future health.